A community of patients and caregivers of Pulmonary Hypertension.
Laman Bahasa Malaysia
PPHM, a non-profit organisation, is a Malaysian patient support group for pulmonary hypertension, a rare disease. We seek to provide support in terms of knowledge, emotional well-being and hospital visit logistics. Also, we raise public awareness on this disease, as well as perform fundraisers to fund our support programs.
Get together, move forward.
Knowledge
Learn medical, lifestyle and psychosocial information from experts; share tips with fellow patients and caregivers.
Support
Living with PH can be difficult, but you are not alone – talk to others who understand, who will cheer you on!
The term PH means high blood pressure in the lungs. In “regular” hypertension (also known as high blood pressure or “systemic hypertension) the pressure in the arteries throughout the body is higher than it should be. This can be measured with a blood pressure cuff. In PH, the blood vessels specifically in the lungs are affected. They can become stiff, damaged or narrow, and the right side of the heart must work harder to pump blood through.
Each form of PH is different, so it is important for newly-diagnosed patients to find a PH specialist who can accurately find what is causing their PH and develop a treatment plan that is right for that specific type of PH as soon as possible. Every person with PH is different, and new research is being conducted every day with the potential to improve the outlook for people living with this disease. Once in the care of a PH-treating health care team and on appropriate therapy, people with PH can live many years.
